thank u

thanks to all well wishers ( i got a lot of messages via sms, thank you all so much!). alhamdulillah hadif is ok now.except for his palm and feet, no more dried skin & kulit terkopek at other parts of his body. 

we were discharged on Sunday, 5th July 2009 after hadif finished off his antibiotic. he was so happy that he’s able to run free & play with his big bro. he was supplied with quite a number of krim (muka pakai krim lain, badan pakai krim lain, genital area pun the doc prescribed krim lain). wanting my son to have his good looks back, i religiously apply the various krim on him, day in, day out :)

during follow-up checkup on Monday,13 July 09, the doc was concerned with the area around his small butt – which is red and infected with other type of infection. she prescribed hadif another type of med for that part only

during his stays at the hosp, the good doc (paed) diagnosed him as  immunosuppress - weak body immune system; due to his kidney problem. this is somewhat so new to us, so i didn’t know how to react or what action that i need to take/do. the doc also did renal function test on hadif, and the reading for kidney function, tho not alarming but quite disturbing for me. i hope it’s not true. we’re going to repeat the test on Sept 09 with his usual renal specialist and also kidney ultrasound, 1 week before the test. hope everything’s ok and we’ll see what else we’re going to do to help him. pls pray for him.

 

i love you baby

today is the 5th day we’re here at the hosp. the truth is, we (hadif & me) are getting restless. hadif kept staring through the window and told me that he wanted to “naik carr!”.

i let him out to play & run along the hosp corridor since he’s getting cranky and demanded me to let him out. there are quite a few people; adult & children there as well. they kept staring at hadif. i’m not sure whether it’s because they’re sympathy or curious or disgusted with his look. he got dried & peeled skin all over his face & body. i know i should not be bothered, but deep inside i was a bit sad.   

Hadif is sick :(

without warning, he is infected with this cruel infection that saw him scream his lungs out with PAIN. he was in so much pain that left me almost crazy for not knowing what to do. up until now i can still hear him screaming with agonizing pain in my ear “tolooong ummi…sakitt ummi..tolong hadif ummi..” this is the 2nd most terrible thing that happen in my life since his birth. this was totally different from the time he was diagnosed with renal failure. totally different! at that time he was still a baby and i think he did not experience any pain, only maybe discomfort with the treatment that he had to endured.

at 2 yrs 1 mth, he can definitely express himself and when pain struck him, he definitely let me know how he felt. i was totally powerless, helpless and dumbstruck – just don’t know what to do. it happen just overnight (sunday night) and got worst (spread to all over his body) on monday night. worsen with the fact that he has renal problem, i almost lost my mind.

This is how it infected hadif:

    

   

 here’s what he’s having: Staphylococcal scalded skin syndrome

What is staphylococcal scalded skin syndrome?

Staphylococcal scalded skin syndrome (SSSS) is an illness characterised by red blistering skin that looks like a burn or scald, hence its name staphylococcal scalded skin syndrome. SSSS is caused by the release of two exotoxins (epidermolytic toxins A and B) from toxigenic strains of the bacteria Staphylococcus aureus. Desmosomes are the part of the skin cell responsible for adhering to the adjacent skin cell. The toxins bind to a molecule within the desmosome called Desmoglein 1 and break it up so the skin cells become unstuck.

SSSS has also been called Ritter’s disease or Lyell’s disease when it appears in newborns or young infants.

Who is at risk of staphylococcal scalded skin syndrome?

SSSS occurs mostly in children younger than 5 years, particularly neonates (newborn babies). Lifelong protective antibodies against staphylococcal exotoxins are usually acquired during childhood which makes SSSS much less common in older children and adults. Lack of specific immunity to the toxins and an immature renal clearance system (toxins are primarily cleared from the body through the kidneys) make neonates the most at risk.

Immunocompromised individuals and individuals with renal failure, regardless of age, may also be at risk of SSSS.

What are the signs and symptoms of staphylococcal scalded skin syndrome?

SSSS usually starts with fever, irritability and widespread redness of the skin. Within 24-48 hours fluid-filled blisters form. These rupture easily, leaving an area that looks like a burn.

Characteristics of the rash include:

• Tissue paper-like wrinkling of the skin is followed by the appearance of large fluid-filled blisters (bullae) in the armpits, groin and body orifices such as the nose and ears.
• Rash spreads to other parts of the body including the arms, legs and trunk. In newborns, lesions are often found in the diaper area or around the umbilical cord.
• Top layer of skin begins peeling off in sheets, leaving exposed a moist, red and tender area.

Other symptoms may include tender and painful areas around the infection site, weakness, and dehydration.