thank u

thanks to all well wishers ( i got a lot of messages via sms, thank you all so much!). alhamdulillah hadif is ok now.except for his palm and feet, no more dried skin & kulit terkopek at other parts of his body. 

we were discharged on Sunday, 5th July 2009 after hadif finished off his antibiotic. he was so happy that he’s able to run free & play with his big bro. he was supplied with quite a number of krim (muka pakai krim lain, badan pakai krim lain, genital area pun the doc prescribed krim lain). wanting my son to have his good looks back, i religiously apply the various krim on him, day in, day out 🙂

during follow-up checkup on Monday,13 July 09, the doc was concerned with the area around his small butt – which is red and infected with other type of infection. she prescribed hadif another type of med for that part only 🙂

during his stays at the hosp, the good doc (paed) diagnosed him as  immunosuppress – weak body immune system; due to his kidney problem. this is somewhat so new to us, so i didn’t know how to react or what action that i need to take/do. the doc also did renal function test on hadif, and the reading for kidney function, tho not alarming but quite disturbing for me. i hope it’s not true. we’re going to repeat the test on Sept 09 with his usual renal specialist and also kidney ultrasound, 1 week before the test. hope everything’s ok and we’ll see what else we’re going to do to help him. pls pray for him.

 

i love you baby

today is the 5th day we’re here at the hosp. the truth is, we (hadif & me) are getting restless. hadif kept staring through the window and told me that he wanted to “naik carr!”.

i let him out to play & run along the hosp corridor since he’s getting cranky and demanded me to let him out. there are quite a few people; adult & children there as well. they kept staring at hadif. i’m not sure whether it’s because they’re sympathy or curious or disgusted with his look. he got dried & peeled skin all over his face & body. i know i should not be bothered, but deep inside i was a bit sad.   

Hadif is sick :(

without warning, he is infected with this cruel infection that saw him scream his lungs out with PAIN. he was in so much pain that left me almost crazy for not knowing what to do. up until now i can still hear him screaming with agonizing pain in my ear “tolooong ummi…sakitt ummi..tolong hadif ummi..” this is the 2nd most terrible thing that happen in my life since his birth. this was totally different from the time he was diagnosed with renal failure. totally different! at that time he was still a baby and i think he did not experience any pain, only maybe discomfort with the treatment that he had to endured.

at 2 yrs 1 mth, he can definitely express himself and when pain struck him, he definitely let me know how he felt. i was totally powerless, helpless and dumbstruck – just don’t know what to do. it happen just overnight (sunday night) and got worst (spread to all over his body) on monday night. worsen with the fact that he has renal problem, i almost lost my mind.

This is how it infected hadif:

    

   

 here’s what he’s having: Staphylococcal scalded skin syndrome

What is staphylococcal scalded skin syndrome?

Staphylococcal scalded skin syndrome (SSSS) is an illness characterised by red blistering skin that looks like a burn or scald, hence its name staphylococcal scalded skin syndrome. SSSS is caused by the release of two exotoxins (epidermolytic toxins A and B) from toxigenic strains of the bacteria Staphylococcus aureus. Desmosomes are the part of the skin cell responsible for adhering to the adjacent skin cell. The toxins bind to a molecule within the desmosome called Desmoglein 1 and break it up so the skin cells become unstuck.

SSSS has also been called Ritter’s disease or Lyell’s disease when it appears in newborns or young infants.

Who is at risk of staphylococcal scalded skin syndrome?

SSSS occurs mostly in children younger than 5 years, particularly neonates (newborn babies). Lifelong protective antibodies against staphylococcal exotoxins are usually acquired during childhood which makes SSSS much less common in older children and adults. Lack of specific immunity to the toxins and an immature renal clearance system (toxins are primarily cleared from the body through the kidneys) make neonates the most at risk.

Immunocompromised individuals and individuals with renal failure, regardless of age, may also be at risk of SSSS.

What are the signs and symptoms of staphylococcal scalded skin syndrome?

SSSS usually starts with fever, irritability and widespread redness of the skin. Within 24-48 hours fluid-filled blisters form. These rupture easily, leaving an area that looks like a burn.

Characteristics of the rash include:

• Tissue paper-like wrinkling of the skin is followed by the appearance of large fluid-filled blisters (bullae) in the armpits, groin and body orifices such as the nose and ears.
• Rash spreads to other parts of the body including the arms, legs and trunk. In newborns, lesions are often found in the diaper area or around the umbilical cord.
• Top layer of skin begins peeling off in sheets, leaving exposed a moist, red and tender area.

Other symptoms may include tender and painful areas around the infection site, weakness, and dehydration.

i am truly upset

today, as i tried to log into my blog after abandon it for quite some time, i stumbled across a collegue’s blog.

in one of her entry, (and actually a few more), i personally think she was writing about her dissatisfaction towards me. this might just my perasan kind-of-thing but knowing her scope of work (involves in just 1 project – and i am in that project as well among other projects that i involves in), i know she was writing about me. i just know it!

she accused that there’s taichism happen in my office. by looking at the entry date, i know what it’s all about. it’s because i asked her to minutes our meeting, when i was actually the secretary. reason is simple, the minutes need to be endorsed at the same time as the memo paper and it need to be done immediately. i had explained it to her that day itself.i was working my ass in weekend to get the paper ready. is it so wrong that i gave that order?why is she making it a big deal?

i might be wrong tho to perasan that she was writing about me, but it’s really simple to know that i am not wrong. i know it’s her blog and she can write anything she likes. whatever it is, i just feel truly dissapointed, annoyed and sangat terasa hati.and i am a person who’s sgt jarang terasa hati.

now, i am so fed-up of being in that project. i try as i might to do the best, but i don’t think she appreciate my effort. i don’t need her approval, just some respect. is it so hard to do?

It’s a Holi, Holiday!

This year will be the year that is filled with holiday plan. i figure now is a good time for us to travel since the kids have grown a little and a bit easy to handle.

We went to kuching last december 08 and to cameron highland last jan (09). last week we took a long leaves (4 days!), pack our bags (we’re surely not travelling light!) and headed to Langkawi. Last time we went to the island was in 2007 during LIMA, and we did not bring our 2nd boy together with us (he was still a small baby at the time).

The island was breathtaking! the beaches, the scenery, the food & the people was fabulous. life in the island was very laidback – far from hectic and hustle bustle of the city. And this is coming from me who’s certainly does not fancy sun, sand and beach!

We stayed at Langkasuka resort – 10 mins from the airport and about 20 mins to Pekan Kuah. the room was very spacious, with 2 queen beds. it has nice, clean beach, very interesting swimming pool (with ‘air terjun’-as my kids calls it) and also kids pool. however, the breakfasts were not as i expected it to be (aka lousy).

We went to almost all tourist spots at Langkawi. cable car at Gunung Mat Cincang, Makam Mahsuri, Telaga Air Hangat, Pantai Cenang, Pantai Pasir Hitam, Taman Buaya and island hopping (Pulau Singa Besar, Beras Basah and Tasik Dayang Bunting).

The kids were having a blast of time (partly because the parents are 24/7 with them) . Abg was having fun especially at Langkawi Geopark where tourist were allowed to touch and feed the animals (rabbit and deer farm, we missed the elephant) . abg really loves animals, but adek was not interested and scared (like the mother..hehehhe).

It was certainly  fun and a bonding time for us. we will certainly come again next time!

A brand new year, d same old me ;)

this is my 1st update in 2009. i’ll try my best to atleast update once a week so later i can read back, relive the memory and learn something from it.

2008

the year has been kind and tolerable for us, after 2007 when adek was born and we had gone through a journey we never thought we could survive. this is the year when adek’s health improved tremendously (despite some hiccups) and doc describe it as close-to-normal (alhamdulillah). however, we are to continue with his meds, except 1 high-blood preassure med that was off since his bp reading was almost ok.

adek celebrated his 1 yr of life in May and we’re forever thankful to Allah for this precious gift He had granted for us to love, cherish and care. and we’re forever in gratitude when abg celebrate in Sept, his 3 wonderful years that he had shared with us. the joy he brings can never be described in words. 

me and hubby celebrated the big 3.0. in June and July respectively. we’re getting older and wiser 🙂 and last Dec, we celebrate the day that we were united as a husband and wife 4 years ago. i pray everyday for us to survive everything, come what may. i pray that we will be granted a clean bill of health to go through life together and to raise our children to be a good muslim and a decent human.

we’re blessed with bottom-less rezqi in each and every way that i could never imagine. alhamdulillah

2009

i hope this year will also treat us kindly. i hope that we will live each day in this year to the fullest so that we will never regret anything at the end of each day. amiin.

 

story no 80 : taking one step at a time

*** nowadays work has really gotten into me. i am not complaining on how bz i am or how bz i will be in the weeks to come. i am all ok with the extra work load piles onto my shoulder. no problem on that department. however, i must admit that i am feeling a bit stressful on the responsibilities that i have to bear. that everything i do will impact on others, be it staff or even progress of a project. i fear that i will make wrong decisions and people will have doubt on me. and there just way too many decisions that i have to make. and even to prove to myself that i can do it… (just rubbish talk…i need to get this out of my system 🙂 )***

anyway, on a happier note, we are going to Kuching for a holi, holiday 🙂 i really can’t wait!!! it would be adek’s 1st time on a plane ride and i hope everything will be smooth. i don’t really plan any proper itinerary for the visit..don’t have much time to plan pon. so basically it will be a very laid back kind of holiday, no pressure on what must to visit or anything. just a happy, relax and fun time as a family. just the four of us 🙂

story no 79 : abg the warrior!

*** i seriously dun have that much time to blog these days since i am oblige and very much involve with hub latest project (& achievement, i would say). however, i promise myself to blog about adek’s visit to the hospital for renal bi-annual checkup and also to demc for hand xtray (!!!). afterall, this is the place i want to tell the story of my kids and our where-about (also what-about)… ***

story no 78 : sibling

story no 77 : ummi mkn nasik ker?

last night, while adek was sleeping and dear hub was out of town, abg and i watch tee vee together. as i was sitting comfortably on the sofa, abg wanted to lie his head down on my lap – saja nak mengada2 since his daddy is not around. after few seconds  he stood up then ask me:

abg : “ummi makan nasik ker?”

ummi : “ha’ahh, kenapa abg?”

abg : “ummi makan nasi banyak ker?”

ummi : “kenapa plak?”

abg : “perut ummi besarrrr…banyak nasik…tak best lah baring kat ummi!”

ummi : @$%^&*((*&*((*& dang!!!

i guess i need to start diet now!